AustralieFrV1, Main, Exploration, bibRecord, 002700

Toward Ensuring Health Equity: Readability and Cultural Equivalence of OMERACT Patient-reported Outcome Measures

Identifieur interne : 002700 ( Main/Exploration ); précédent : 002699; suivant : 002701

Toward Ensuring Health Equity: Readability and Cultural Equivalence of OMERACT Patient-reported Outcome Measures

Auteurs : Jennifer Petkovic ; Jonathan Epstein ; Rachelle Buchbinder ; Vivian Welch ; Tamara Rader ; Anne Lyddiatt ; Rosemary Clerehan ; Robin Christensen ; Annelies Boonen ; Niti Goel ; Lara J. Maxwell ; Karine Toupin-April ; Maarten De Wit ; Jennifer Barton ; Caroline Flurey ; Janet Jull ; Cheryl Barnabe ; Antoine G. Sreih ; Willemina Campbell ; Christoph Pohl ; Mehmet Tuncay Duruöz ; Jasvinder A. Singh ; Peter S. Tugwell ; Francis Guillemin

Source :

The Journal of rheumatology [ 0315-162X ] ; 2015.

RBID : PMC:4765994

Descripteurs français

English descriptors

KwdEn :
- Acculturation, Adult, Consensus Development Conferences as Topic, Female, Health Equity, Health Literacy, Humans, Male, Middle Aged, Patient Outcome Assessment, Practice Guidelines as Topic, Rheumatic Diseases (diagnosis), Rheumatic Diseases (therapy), Self Report.
MESH :
- diagnosis : Rheumatic Diseases.
- therapy : Rheumatic Diseases.
- Acculturation, Adult, Consensus Development Conferences as Topic, Female, Health Equity, Health Literacy, Humans, Male, Middle Aged, Patient Outcome Assessment, Practice Guidelines as Topic, Self Report.

Abstract

Objective

The goal of the Outcome Measures in Rheumatology (OMERACT) 12 (2014) equity working group was to determine whether and how comprehensibility of patient-reported outcome measures (PROM) should be assessed, to ensure suitability for people with low literacy and differing cultures.

Methods

The English, Dutch, French, and Turkish Health Assessment Questionnaires and English and French Osteoarthritis Knee and Hip Quality of Life questionnaires were evaluated by applying 3 readability formulas: Flesch Reading Ease, Flesch-Kincaid grade level, and Simple Measure of Gobbledygook; and a new tool, the Evaluative Linguistic Framework for Questionnaires, developed to assess text quality of questionnaires. We also considered a study assessing cross-cultural adaptation with/without back-translation and/or expert committee. The results of this preconference work were presented to the equity working group participants to gain their perspectives on the importance of comprehensibility and cross-cultural adaptation for PROM.

Results

Thirty-one OMERACT delegates attended the equity session. Twenty-six participants agreed that PROM should be assessed for comprehensibility and for use of suitable methods (4 abstained, 1 no). Twenty-two participants agreed that cultural equivalency of PROM should be assessed and suitable methods used (7 abstained, 2 no). Special interest group participants identified challenges with cross-cultural adaptation including resources required, and suggested patient involvement for improving translation and adaptation.

Conclusion

Future work will include consensus exercises on what methods are required to ensure PROM are appropriate for people with low literacy and different cultures.

Url:

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4765994

DOI: 10.3899/jrheum.141168
PubMed: 26077410
PubMed Central: 4765994

Affiliations:

Le document en format XML

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<series><title level="j">The Journal of rheumatology</title>
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<term>Adult</term>
<term>Consensus Development Conferences as Topic</term>
<term>Female</term>
<term>Health Equity</term>
<term>Health Literacy</term>
<term>Humans</term>
<term>Male</term>
<term>Middle Aged</term>
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<term>Adulte d'âge moyen</term>
<term>Autorapport</term>
<term>Compétence informationnelle en santé</term>
<term>Conférences de consensus comme sujet</term>
<term>Femelle</term>
<term>Guides de bonnes pratiques cliniques comme sujet</term>
<term>Humains</term>
<term>Mâle</term>
<term>Rhumatismes ()</term>
<term>Rhumatismes (diagnostic)</term>
<term>Équité en santé</term>
<term>Évaluation des résultats des patients</term>
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<keywords scheme="MESH" qualifier="therapy" xml:lang="en"><term>Rheumatic Diseases</term>
</keywords>
<keywords scheme="MESH" xml:lang="en"><term>Acculturation</term>
<term>Adult</term>
<term>Consensus Development Conferences as Topic</term>
<term>Female</term>
<term>Health Equity</term>
<term>Health Literacy</term>
<term>Humans</term>
<term>Male</term>
<term>Middle Aged</term>
<term>Patient Outcome Assessment</term>
<term>Practice Guidelines as Topic</term>
<term>Self Report</term>
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<term>Adulte</term>
<term>Adulte d'âge moyen</term>
<term>Autorapport</term>
<term>Compétence informationnelle en santé</term>
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<front><div type="abstract" xml:lang="en"><sec id="S1"><title>Objective</title>
<p id="P2">The goal of the Outcome Measures in Rheumatology (OMERACT) 12 (2014) equity working group was to determine whether and how comprehensibility of patient-reported outcome measures (PROM) should be assessed, to ensure suitability for people with low literacy and differing cultures.</p>
</sec>
<sec id="S2"><title>Methods</title>
<p id="P3">The English, Dutch, French, and Turkish Health Assessment Questionnaires and English and French Osteoarthritis Knee and Hip Quality of Life questionnaires were evaluated by applying 3 readability formulas: Flesch Reading Ease, Flesch-Kincaid grade level, and Simple Measure of Gobbledygook; and a new tool, the Evaluative Linguistic Framework for Questionnaires, developed to assess text quality of questionnaires. We also considered a study assessing cross-cultural adaptation with/without back-translation and/or expert committee. The results of this preconference work were presented to the equity working group participants to gain their perspectives on the importance of comprehensibility and cross-cultural adaptation for PROM.</p>
</sec>
<sec id="S3"><title>Results</title>
<p id="P4">Thirty-one OMERACT delegates attended the equity session. Twenty-six participants agreed that PROM should be assessed for comprehensibility and for use of suitable methods (4 abstained, 1 no). Twenty-two participants agreed that cultural equivalency of PROM should be assessed and suitable methods used (7 abstained, 2 no). Special interest group participants identified challenges with cross-cultural adaptation including resources required, and suggested patient involvement for improving translation and adaptation.</p>
</sec>
<sec id="S4"><title>Conclusion</title>
<p id="P5">Future work will include consensus exercises on what methods are required to ensure PROM are appropriate for people with low literacy and different cultures.</p>
</sec>
</div>
</front>
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Toward Ensuring Health Equity: Readability and Cultural Equivalence of OMERACT Patient-reported Outcome Measures

Toward Ensuring Health Equity: Readability and Cultural Equivalence of OMERACT Patient-reported Outcome Measures

Source :

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English descriptors

Abstract

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